Appendix A - Adverse Event Definitions

Appendix F - Quality of Life Questionnaires

English Pediatric Quality of Life Questionnaire

French Pediatric Quality of Life Questionnaire

Spanish Pediatric Quality of Life Questionnaire

Appendix G - Trail Making Test (Part B)

Intermacs Only

Appendix H - Kansas City Cardiomyopathy Questionnaire (KCCG)

Appendix I - Stroke Scales

Appendix J - Data Access Request

One of Intermacs/Pedimacs deliverables to the MCSD community is to provide statistical analyses and/or registry data to established recipients including the Federal partners (FDA, CMS and NHLBI), and collaborating investigators. Intermacs makes data and analytical resources available for research purposes through a process overseen by the Data Access, Analysis, and Publications Committee (DAAP).  This committee, chaired by Dr. Frank Pagani,  reviews all research proposals and is now meeting bi-quarterly.

There are two analysis options for a researcher interested in requesting registry-wide data:

Please be sure to  review our Existing Research and Statistical Summaries to avoid the submission of redundant requests.

Confidentiality and Privacy Policy
Intermacs is committed to maintaining the confidentiality and privacy of its membership. We do not sell or give out our membership data or contact information for our PI's and Coordinators. Any requests to obtain information from our membership require an interested party to submit a proposal to our Data Access, Analysis and Publications Committee for approval and pay any associated costs of having Intermacs directly collect information from our membership. Please contact Grant Studdard by email at or by phone at (205) 996-7761 for more information.

Appendix K - Device Brand List

Appendix L - Roster and Contact Information

Appendix M - Intermacs Users' Guide

Intermacs only. Click here for Intermacs appendices.

Appendix N - Pedimacs Users' Guide

Appendix O - Profiles of Advanced Heart Failure

Appendix P - Intermacs Data Collection Forms

Intermacs only. Click here for Intermacs appendices.

Appendix Q - Pedimacs Data Collection Forms

Appendix R - Clinical Center Responsibilities for Medical Device Reporting

Appendix S - Miscellaneous