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History:

Now called the Pediatric Heart Transplant Society (PHTS), the Pediatric Heart Transplant Study Registry was established in 1993 by a group of physicians who wanted to improve the lives of children who needed a heart transplant. The primary purposes of the organization was to establish and maintain a prospective, event driven database for heart transplantation, to encourage and stimulate basic and clinical research in the field of pediatric heart transplantation, and to promote new therapeutic strategies. The ultimate goal was to improve the lives of pediatric heart transplant recipients.

With more than 25 years of data collection, PHTS has produced over 120 abstract presentations and over 80 peer-reviewed manuscripts analyzing the continuum from pre-transplant risk factors to post-transplant morbidities which impact long-term survival after heart transplant in childhood. Information gained has significantly increased our understanding of pediatric heart transplantation and has allowed pediatric heart transplant doctors and nurses to help children after heart transplant live longer and have a better quality of life.

Mission:

The Pediatric Heart Transplant Society is a multidisciplinary, professional organization dedicated to advancing the science and treatment of children during listing for and following heart transplantation.

Purposes:

  • Maintaining an international, prospective, event driven, quality improvement registry for pediatric heart transplantation
  • Promoting collaboration among professionals in the field of pediatric heart transplantation
  • Encouraging and stimulating basic and clinical research in the field of pediatric heart transplantation
  • Promoting new therapeutic strategies
  • Providing educational resources for patients and families
  • Holding bi-annual meetings featuring presentations and discussions relevant to pediatric heart transplantation
  • Developing best practices and procedures for caring for children after heart transplant
  • Awarding research grants for the study of pediatric heart transplantation
  • Making available limited datasets for approved research projects
  • Increasing awareness of pediatric heart transplantation
  • Providing annual quality assurance reports and benchmarking for participating hospitals
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