Consortium Sites
Ann & Robert H. Lurie Children's Hospital of Chicago
225 East Chicago, Box 30 Chicago, IL 60611
Principal Investigator: Robert Listernick, MD; Stewart Goldman, MD Study Coordinator: This email address is being protected from spambots. You need JavaScript enabled to view it.
Phone: (773) 975-8664
Boston/Harvard Center for NF and Allied Disorders
Neurofibromatosis Program
300 Longwood Avenue
Boston, MA 02115
Principal Investigator: Nichole Ullrich, MD, PhD
Study Coordinator:
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Phone: (617) 632-4595
Children's Hospital at Westmead, University of Sydney
Cnr Hawkesbury Road and Hainsworth Street, Westmead Locked Bag 4001, Westmead, 2145
Sydney, NSW, Australia
Principal Investigator: Kathryn North, MD, FRACP
Study Coordinator:
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Phone: (02) 9845 3057
This site is only recruiting for the STARS study at this time
Children's Hospital of Los Angeles
300 Medical Plaza, Box 696824 Los Angeles, CA 90095
Principal Investigator: Tena Rosser, MD Study Coordinator: This email address is being protected from spambots. You need JavaScript enabled to view it. ; This email address is being protected from spambots. You need JavaScript enabled to view it.
Phone: (323) 361-3727; (323) 361-7319
Children's National Medical Center
Department of Neurology
111 Michigan Avenue, NW
Washington, DC 20010
Principal Investigator: Roger Packer, MD
Study Coordinator:
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Phone: (202) 476-5299; (202) 476-5181
Cincinnati Children's Hospital Medical Center
3333 Burnet Avenue - ML 4006
Cincinnati, OH 45229-3039
Principal Investigator: Elizabeth Schorry, MD; Brian Weiss, MD
Study Coordinator:
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Phone: (513) 636-8616
House Ear Institute
2100 West Third Street Los Angeles, CA 90057
Principal Investigator: This email address is being protected from spambots. You need JavaScript enabled to view it. Study Coordinator: This email address is being protected from spambots. You need JavaScript enabled to view it.
Phone: (213) 273-8025
John Hopkins Hospital
1550 Orleans St. Ste 1M-16 Baltimore, MD 21231
Principal Investigator: Jaishri Blakely, MD Study Coordinator: This email address is being protected from spambots. You need JavaScript enabled to view it.
Phone: (410) 614-9916
Massachusetts General Hospital
326 Cambridge Street 210A Boston, MA 02114
Principal Investigator: Scott Plotkin, MD, PhD
Study Coordinator:
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Phone: (617) 724-1990
National Cancer Institute
Pediatric Oncology Branch
10 Center Drive
Building 10 CRC, room 1-5750
Bethesda, MD 20192-1101
Principal Investigator: Brigitte Widemann, MD
Study Coordinator:
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Phone: (301) 402-1848; (301) 496-8009
New York University Medical Center
Hassenfeld Clinic 160 East 32nd St New York, NY 10016
Principal Investigator: Jeffrey Allen, MD Study Coordinator: This email address is being protected from spambots. You need JavaScript enabled to view it.
Phone: (212) 263-9924
Ohio State University Wexner Medical Center
OSU Eye & Ear Institute 915 Olentangy River Road Ste 4000 Columbus, OH 43212
Principal Investigator: D. Bradley Welling, MD, PhD Study Coordinator: This email address is being protected from spambots. You need JavaScript enabled to view it.
Phone: (614) 366-9244
University of Alabama at Birmingham
Department of Genetics
Kaul Human Genetics Building
1530 3rd Ave S
Birmingham, AL 35294
Principal Investigator: Bruce R. Korf, MD, PhD
Study Coordinator:
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Phone: (205) 996-2916
University of Chicago
Pediatric Neurology MC 3055
5841 S. Maryland Avenue
Chicago, IL 60637
Principal Investigator: James Tonsgard, MD
Study Coordinator:
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Phone: (773) 203-2344
University of Indiana
1044 West Walnut Street Cancer Center, Room 402A Indianapolis, IN 46202
Principal Investigator: Wade Clapp, MD Study Coordinator: This email address is being protected from spambots. You need JavaScript enabled to view it.
Phone: (317) 278-9290
University of Pennsylvania
Children's Hospital of Philadelphia
3400 Civic Center Boulevard
Philadelphia, PA 19104
Principal Investigator: Michael Fisher, MD
Study Coordinator:
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Phone: (267) 426-5503
University of Utah
Division of Medical Genetics
Department of Pediatrics
2C412 SOM
50 N. Mario Capecchi Dr.
Salt Lake City, Utah 84132
Principal Investigator: David Viskochil, MD, PhD
Study Coordinator:
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Phone: (801) 587-9017
Washington University
Department of Neurology
Box 8111
660 South Euclid Avenue
St.Louis, MO 63110
Principal Investigator: David H. Gutmann, MD, PhD
Study Coordinator:
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Phone: (314) 454-4240; (314) 454-4353