Caregiving

Personal Care Attendant (PDF)
Offers guidelines and ideas on employing and managing a PCA. Topics include advertising, interviewing, and qualities to consider when selecting a PCA. Can be used by rehab service providers with their clients. This and other InfoSheets are provided by the University of Alabama at Birmingham Spinal Cord Injury Model System (UAB-SCIMS).

Caring for Caregivers (PDF)
Discusses the issues of caregiving for people with spinal cord injury and offers a self-test for stress and tips for managing self-care. This and other InfoSheets are provided by the University of Alabama at Birmingham Spinal Cord Injury Model System (UAB-SCIMS).

Accepting New Help
This is one of the Educational Brochures from the Rocky Mountain Regional Spinal Cord Injury System. This document is to help people with maintaining health and living long-term with a spinal cord injury. Spanish

Personal Caregivers
Three individuals with quadriplegia share their experiences and tips for hiring, managing and (when necessary) firing personal caregivers. Following these presentations, a rehabilitation psychologist discusses maintaining personal boundaries with personal caregivers. This is an educational video program of a forum for persons with SCI and their friends, family members and caregivers. Forums are offered by the Northwest Regional Spinal Cord Injury System (NWRSCIS). Presented on April 8, 2008.

The National Alliance for Caregiving
A non-profit coalition of national organizations focusing on issues of family caregiving.

Caregiving  
This is one of the Educational Brochures from the Rocky Mountain Regional Spinal Cord Injury System. This document is to help people with maintaining health and living long-term with a spinal cord injury. Spanish

Long Term Caregivers  
This is one of the Educational Brochures from the Rocky Mountain Regional Spinal Cord Injury System. This document is to help people with maintaining health and living long-term with a spinal cord injury. Spanish

Personal Care Assistants: Find and Keep Them  
This is one of the Educational Brochures from the Rocky Mountain Regional Spinal Cord Injury System. This document is to help people with maintaining health and living long-term with a spinal cord injury. Spanish

Personal Care Assistants: How Much Help Should I Hire?  
This is one of the Educational Brochures from the Rocky Mountain Regional Spinal Cord Injury System. This document is to help people with maintaining health and living long-term with a spinal cord injury. Spanish

SCI Caregiving
Watch a collection of videos from FacingDisability.com, a first-of-its-kind Internet-based effort created to connect families who suddenly have to deal with a spinal cord injury with people like them who have already “been there” and “done that.”

Caregiver Burnout
While family caregivers give of themselves out of love, there are real physical, emotional and financial costs associated with caregiving. Learn what can be done to help our caregiving community. From Second Opinion for Caregivers, a National Public Education Campaign.

Center for Personal Assistance Services
Promotes research, training, technical assistance and dissemination about personal assistance services to ensure that people with self-care limitations can find information that will help them live independently.

Able People Foundation
Formerly known as Able project, Able People Foundation focuses on the needs of very low-income seniors and people with disabilities, especially those with physical limitations, and works toward preventing injury at home (to both the caregiver and the patient), increasing independence, promoting community interaction, and reducing the healthcare costs to our community and county through providing basic mobility products and advocacy education.

Peer & Family Support Program (PFSP)
PFSP, a program by the Christopher & Dana Reeve Foundation, empowers people living with paralysis, their families, and their caregivers by helping them to go forward living healthy, full lives by providing emotional support, guidance and by sharing real-world experiences with people seeking advice, those who are living well after paralysis can help to answer questions and find solutions to life's common challenges through confidential discussions and demonstration