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Neurofibromatosis Consortium

Improving the quality of life of persons with neurofibromatosis

The Consortium consists of seventeen primary and seven affiliate clinical centers around the US and Australia with an Operations Center at the University of Alabama at Birmingham and a Data Center at Children's Hospital of Philadelphia to coordinate consortium activities.

Consortium Sites Clinical Trials Contact

About the Neurofibromatosis Consortium

Since the discovery of the genes responsible for the different forms of neurofibromatosis, much has been learned about how the various problems associated with neurofibromatosis come about. This opens the door towards development and testing of medications that may be helpful in preventing or treating complications of the disorders. The NF Clinical Trials Consortium was formed in 2006 with funding from the U.S. Army Medical Research and Materiel Command to carry out clinical trials of such medications.