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Ann & Robert H. Lurie Children's Hospital of Chicago

225 East Chicago
Box 30
Chicago, IL 60611

Principal Investigator: Miriam Bornhorst, MD

Phone: (312) 227-3218

Click to visit website 


Boston/Harvard Center for NF and Allied Disorders

Neurofibromatosis Program
300 Longwood Avenue 
Boston, MA 02115

Principal Investigator: Nicole Ullrich, MD, PhD

Email Address: Nicole.ullrich@childrens.harvard.edu

Phone: (617) 632-3270

Click here to visit website


Children's Hospital at Westmead, University of Sydney 

Cnr Hawkesbury Road and Hainsworth Street, Westmead
Locked Bag 4001, Westmead, 2145 
Sydney, NSW, Australia

Principal Investigator: Geoff McCowage, MD

Phone:  (02) 9845 3057

Click here to visit website


Children's Hospital Los Angeles

4650 Sunset Blvd, MS#82
Los Angeles, CA 90027

Principal Investigator: Tena Rosser, MD

Phone: (323) 361-2471

Click here to visit website


Children’s National Hospital

Department of Neurology
111 Michigan Avenue, NW
Washington, DC 20010

Principal Investigator: Benjamin Siegel, MD,

Phone: (202) 476-3434

Click here to visit website


Cincinnati Children's Hospital Medical Center

3333 Burnet Avenue - ML 4006
Cincinnati, OH 45229-3039

Principal Investigator: Peter de Blank, MD

Email Addresscancer@cchmc.org

Phone: (513) 517-2068; (513) 636-2047

Click here to visit website


Indiana University

1044 West Walnut Street
Cancer Center, Room 402A
Indianapolis, IN 46202

Principal Investigator: Steven Rhodes, MD

Phone: (317) 944-8784

Click here to visit website


Johns Hopkins Hospital

1550 Orleans St.
Ste 1M-16
Baltimore, MD 21231

Principal Investigator: Jaishri Blakely, MD

Phone: (410) 955-9441

Click here to visit website


Massachusetts General Hospital

326 Cambridge Street 210A
Boston, MA 02114 

Principal Investigator: Scott Plotkin, MD, PhD

Phone:  (857) 367-1486

Click here to visit website


The Mayo Clinic

200 First Street SW
Rochester, MN 55905

Principal Investigator: Radhika Dhamija, MBBS

Phone: (507) 284-2511

Click here to visit website


Memorial Sloan Kettering Cancer Center

1275 York Avenue, Box 234
New York, NY 10065

Principal Investigator: Matthias A. Karajannis, MD, MS

Phone: (212) 639-3171

Click here to visit website


National Cancer Institute

Pediatric Oncology Branch
10 Center Drive
Building 10 CRC, room 1-5750
Bethesda, MD 20192-1101

Principal Investigator: Brigitte Widemann, MD

Phone: (240) 760-6203

Click here to visit website


New York University Medical Center

Hassenfeld Clinic
New York, NY 10016

Principal Investigator: Kaleb Yohay, MD

Phone: (212) 263-7744

Click here to visit website  


Stanford University

750 Welch Rd., Suite 317
Palo Alto, CA 94304

Principal Investigator: Cynthia Campen, MD, MScE

Phone: (650) 736-0885

Click here to visit website


University of Alabama at Birmingham/Children's of Alabama

Department of Pediatrics
Division of Hematology/Oncology
1600 7th Avenue S
Lowder Building, Suite 512
Birmingham, AL 35233

Principal Investigator: Girish Dhall, MD
Program Director: Karen Cole-Plourde

Phone: (205) 638-6259

Click here to visit website


University of California San Francisco

550 16th Street
Mission Hall 5203
San Francisco, CA 94143

Principal Investigator: Alyssa Reddy, MD

Phone: (415) 476-5494

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University of Chicago

Pediatric Neurology MC 3055
5841 S. Maryland Avenue 
Chicago, IL 60637

Principal Investigator: James Tonsgard, MD

Phone: (773) 203-2344

Click here to visit website


University of Colorado/Children’s Hospital Colorado

University of Colorado Anschutz Medical Campus
Mail Stop 8302 Room 4102 RC-1 North,
12800 East 19th Ave
Aurora CO 80045

Principal Investigator: Nicholas Foreman, MD

Phone: (720) 289-1451

Click here to visit website


University of Pennsylvania

Children's Hospital of Philadelphia
3400 Civic Center Boulevard 
Philadelphia, PA 19104

Principal Investigator: Michael Fisher, MD

Phone: (215) 590-7012

Click here to visit website


Washington University in St. Louis

Department of Neurology
Box 8111
660 South Euclid Avenue 
St.Louis, MO 63110

Principal Investigator: Amy Armstrong, MD

Email Address: Peds-HemOnc_Regulatory@email.wustl.edu

Phone: (314) 454-4240

Click here to visit website


Children's Healthcare of Atlanta

Department of Pediatric Neurology
605 Chantilly Drive NE, Suite 300
Atlanta, GA 30324

Principal Investigator: David S. Wolf, MD, PhD

Phone: (404) 785-5437

Click here to visit website


Texas Scottish Rite Hospital

Texas Scottish Rite Hospital for Children
2222 Welborn St
Dallas, TX 75219

Principal Investigator:  Laura Klesse, MD, PhD

Phone: (214) 559-5000

Click here to visit website


University of Texas Southwestern

Neurofibromatosis Clinic
Children's Health Dallas
1935 Medical District Drive
Dallas, Texas 75235

Principal Investigator:  Laura Klesse MD, PhD

Phone: (214) 456-2382

Click here to visit website


Murdoch Children’s Research Institute/Royal Children’s Hospital

Royal Children’s Hospital
Flemington Road, Parkville
Victoria 3052 Australia

Principal Investigator:  Jonathan Payne, MD

Phone:+61 3 8341 6200

Click to visit website