
Ann & Robert H. Lurie Children's Hospital of Chicago
225 East Chicago
Box 30
Chicago, IL 60611
Principal Investigator: Miriam Bornhorst, MD
Phone: (312) 227-3218
Boston/Harvard Center for NF and Allied Disorders
Neurofibromatosis Program
300 Longwood Avenue
Boston, MA 02115
Principal Investigator: Nicole Ullrich, MD, PhD
Email Address: Nicole.ullrich@childrens.harvard.edu
Phone: (617) 632-3270
Children's Hospital at Westmead, University of Sydney
Cnr Hawkesbury Road and Hainsworth Street, Westmead
Locked Bag 4001, Westmead, 2145
Sydney, NSW, Australia
Principal Investigator: Geoff McCowage, MD
Phone: (02) 9845 3057
Children's Hospital Los Angeles
4650 Sunset Blvd, MS#82
Los Angeles, CA 90027
Principal Investigator: Tena Rosser, MD
Phone: (323) 361-2471
Children’s National Hospital
Department of Neurology
111 Michigan Avenue, NW
Washington, DC 20010
Principal Investigator: Benjamin Siegel, MD,
Phone: (202) 476-3434
Cincinnati Children's Hospital Medical Center
3333 Burnet Avenue - ML 4006
Cincinnati, OH 45229-3039
Principal Investigator: Peter de Blank, MD
Email Address: cancer@cchmc.org
Phone: (513) 517-2068; (513) 636-2047
Indiana University
1044 West Walnut Street
Cancer Center, Room 402A
Indianapolis, IN 46202
Principal Investigator: Steven Rhodes, MD
Phone: (317) 944-8784
Johns Hopkins Hospital
1550 Orleans St.
Ste 1M-16
Baltimore, MD 21231
Principal Investigator: Jaishri Blakely, MD
Phone: (410) 955-9441
Massachusetts General Hospital
326 Cambridge Street 210A
Boston, MA 02114
Principal Investigator: Scott Plotkin, MD, PhD
Phone: (857) 367-1486
The Mayo Clinic
200 First Street SW
Rochester, MN 55905
Principal Investigator: Radhika Dhamija, MBBS
Phone: (507) 284-2511
Memorial Sloan Kettering Cancer Center
1275 York Avenue, Box 234
New York, NY 10065
Principal Investigator: Matthias A. Karajannis, MD, MS
Phone: (212) 639-3171
National Cancer Institute
Pediatric Oncology Branch
10 Center Drive
Building 10 CRC, room 1-5750
Bethesda, MD 20192-1101
Principal Investigator: Brigitte Widemann, MD
Phone: (240) 760-6203
New York University Medical Center
Hassenfeld Clinic
New York, NY 10016
Principal Investigator: Kaleb Yohay, MD
Phone: (212) 263-7744
Stanford University
750 Welch Rd., Suite 317
Palo Alto, CA 94304
Principal Investigator: Cynthia Campen, MD, MScE
Phone: (650) 736-0885
University of Alabama at Birmingham/Children's of Alabama
Department of Pediatrics
Division of Hematology/Oncology
1600 7th Avenue S
Lowder Building, Suite 512
Birmingham, AL 35233
Principal Investigator: Girish Dhall, MD
Program Director: Karen Cole-Plourde
Phone: (205) 638-6259
University of California San Francisco
550 16th Street
Mission Hall 5203
San Francisco, CA 94143
Principal Investigator: Alyssa Reddy, MD
Phone: (415) 476-5494
University of Chicago
Pediatric Neurology MC 3055
5841 S. Maryland Avenue
Chicago, IL 60637
Principal Investigator: James Tonsgard, MD
Phone: (773) 203-2344
University of Colorado/Children’s Hospital Colorado
University of Colorado Anschutz Medical Campus
Mail Stop 8302 Room 4102 RC-1 North,
12800 East 19th Ave
Aurora CO 80045
Principal Investigator: Nicholas Foreman, MD
Phone: (720) 289-1451
University of Pennsylvania
Children's Hospital of Philadelphia
3400 Civic Center Boulevard
Philadelphia, PA 19104
Principal Investigator: Michael Fisher, MD
Phone: (215) 590-7012
Washington University in St. Louis
Department of Neurology
Box 8111
660 South Euclid Avenue
St.Louis, MO 63110
Principal Investigator: Amy Armstrong, MD
Email Address: Peds-HemOnc_Regulatory@email.wustl.edu
Phone: (314) 454-4240
Children's Healthcare of Atlanta
Department of Pediatric Neurology
605 Chantilly Drive NE, Suite 300
Atlanta, GA 30324
Principal Investigator: David S. Wolf, MD, PhD
Phone: (404) 785-5437
Texas Scottish Rite Hospital
Texas Scottish Rite Hospital for Children
2222 Welborn St
Dallas, TX 75219
Principal Investigator: Laura Klesse, MD, PhD
Phone: (214) 559-5000
University of Texas Southwestern
Neurofibromatosis Clinic
Children's Health Dallas
1935 Medical District Drive
Dallas, Texas 75235
Principal Investigator: Laura Klesse MD, PhD
Phone: (214) 456-2382
Murdoch Children’s Research Institute/Royal Children’s Hospital
Royal Children’s Hospital
Flemington Road, Parkville
Victoria 3052 Australia
Principal Investigator: Jonathan Payne, MD
Phone:+61 3 8341 6200